You only have one body, you might as well learn to get along
Today, May 12th, is Fibromyalgia Awareness Day.
Guess who’s in the video :)
(Source: fibrosupport)
Here it is- Fibromyalgia Awareness Day video!!
please watch, and please spread it around! :)
the people in it are:
Caitlin- http://itty.tumblr.com/Kaylee- heyatleastitsnotcancer.tumblr.com
Sierra- d000m.tumblr.com
Jayne- itdoesntkillmeitmakesmetougher.tumblr.com
Angeline- thebrightsideoffibromyalgia.tumblr.com
Awesome video!! Very personal, yet informative! Love you guys for doing this!!
People say that diseases shouldn’t “change you as a person,” but they do. And not in a bad way, although it’s done that for me too. But it really does change you, it changes the way you think, it changes every tiny decision you make. It changes the way you see other people and the world. But…
![chronicillnesscat:
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “So, what do you do?” Please god anything but this question]
I know people are just trying to get to know you, which is why it’s so hard to dodge this extremely simple conversation starter. But being asked “Where do you work?” or “Where do you go to school?” when you can’t do either leaves you kind of stumbling for an answer, especially if your illness(es) are completely invisible. It’s so hard to explain and really kind of a mood killer, plus who wants to share their health information with a stranger, even a friendly one? Of course, that could just be the “oh my god they’re judging me” anxiety acting up every time I hear it…
It’s not exactly that question, but I can connect to that awful feeling when you’re trying to dodge questions, but it just doesn’t work. They always think it’s ok to ask you questions, because, OF COURSE, the answer will be nothing serious. But then, if you’re being honest at last, it’s the ultimate conversation/mood killer.](http://25.media.tumblr.com/tumblr_m2e745QDXt1qi36g3o1_400.jpg)
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “So, what do you do?” Please god anything but this question]
I know people are just trying to get to know you, which is why it’s so hard to dodge this extremely simple conversation starter. But being asked “Where do you work?” or “Where do you go to school?” when you can’t do either leaves you kind of stumbling for an answer, especially if your illness(es) are completely invisible. It’s so hard to explain and really kind of a mood killer, plus who wants to share their health information with a stranger, even a friendly one? Of course, that could just be the “oh my god they’re judging me” anxiety acting up every time I hear it…
It’s not exactly that question, but I can connect to that awful feeling when you’re trying to dodge questions, but it just doesn’t work. They always think it’s ok to ask you questions, because, OF COURSE, the answer will be nothing serious. But then, if you’re being honest at last, it’s the ultimate conversation/mood killer.
![chronicillnesscat:
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Have trouble talking because of fibro-fog” - “Friend thinks it’s because I’m shy”]
I had this conversation with a friend the other day, about the fact that I’m actually pretty shy (if you don’t know me). She said she could tell by the fact that I sometimes “stutter” (the usual fibro-fog kind). I told her it’s because of my illness, but I’m not quite sure she understood.](http://25.media.tumblr.com/tumblr_m1n4khms7m1qi36g3o1_400.jpg)
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Have trouble talking because of fibro-fog” - “Friend thinks it’s because I’m shy”]
I had this conversation with a friend the other day, about the fact that I’m actually pretty shy (if you don’t know me). She said she could tell by the fact that I sometimes “stutter” (the usual fibro-fog kind). I told her it’s because of my illness, but I’m not quite sure she understood.
Hope you like it!
EDIT: Hope the link works now…
http://www.facebook.com/groups/336641633051661/
I think about making a Facebook group for (rather young) people with chronic illnesses like fibro.
The idea is that we all know those days when you want to rant or talk to someone about all those difficulties, but on tumblr it is hard to answer and interact without spamming and the ask/submission section isn’t that handy.
I’ve been on other FB-pages and groups, but to be honest, a lot of the people there are a lot older than myself.
I wouldn’t “ban” people who are older, if they feel like they belong there, they’re welcome as well, it’s just that I want to focus on people like I find here on tumblr…
What do you say? Feel free to answer or contact me via my ask ^^
![chronicillnesscat:
[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: “Limping far behind main group - What is this, a nature documentary?”]
You guys, if I get eaten by wolves I am going to be so mad at you.](http://24.media.tumblr.com/tumblr_lxfjri92et1qi36g3o1_400.jpg)
[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: “Limping far behind main group - What is this, a nature documentary?”]
You guys, if I get eaten by wolves I am going to be so mad at you.
![chronicillnesscat:
[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Top text reads: “Period arrives.” Bottom text reads: “Time to curl up in the fetal position for three days.”]](http://25.media.tumblr.com/tumblr_m0op98y3Ki1qi36g3o1_400.jpg)
[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Top text reads: “Period arrives.” Bottom text reads: “Time to curl up in the fetal position for three days.”]
personal rant/whiny post ahead
- January 28
- , 2012
![chronicillnesscat:
[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads quote from Kung Fu Panda 2: “Ah my old enemy…. STAIRS”]
Evey.fucking.time.
(my department is ALWAYS on the 4th/5th floor, and I have to go up there every morning.)
#fibromyalgia #fms #cfs](http://24.media.tumblr.com/tumblr_ly3jztcM6k1qi36g3o1_400.jpg)
[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads quote from Kung Fu Panda 2: “Ah my old enemy…. STAIRS”]
Evey.fucking.time.
(my department is ALWAYS on the 4th/5th floor, and I have to go up there every morning.)
#fibromyalgia #fms #cfs
